Boston Marathon 4 PKS Kase Ware

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$1000

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Story

I am the aunt of Kase Ware who was born on 1-23-17 with a rare genetic disorder called PKS( PallisterKillian Syndrome) I have attempted to qualify for Boston for 4 years and finally qualified on my 4th try with the race being dedicated to Kase. I am asking for sponsors to help fund my trip to Boston in April. Today was the big day that I registered for the race of my lifetime. Qualifying for Boston has been a dream of mine for quite sometime and giving the opportunity to take awareness of PKS to a new state where there are thousands of people is a huge opportunity. So I would appreciate any help and I know Kase would appreciate too to help spread the word to other families!

Kase Wyatt ware born Jan. 23,2017 at ruby memoirist hospital in Morgantown WV. Kase has been given a team of doctors who diagnosed him with PKS,Pallister-Killian Mosaic Syndrome. A chromosome abnormality when a tetrasomy of the short arm of chromosome 12 occurs for no known reason. Kase will always have an uphill battle in life do to the uncertain future with this syndrome. Kase was also born deaf and has recently been given the gift to hear with cochlear implants. At the age of 6 months he had his first spinal surgery with the hopes of being able to walk. He undergoes physical therapy a couple times a week and has weekly doctors appointments. Through all of the things that he has gone through, the little man always is smiling and is the happiest baby you have ever seen. Everyday with PKS is unknown and every little thing that Kase accomplishes is a milestone. There are 1-200 known cases nationwide.